Thursday, September 2, 2010
Wednesday, September 1, 2010
An Update
hello all!
well it's been a little over a month since i had the procedure! where does the time go?!!? i have been doing good. all of my improvements have stayed, which is awesome! but i haven't noticed any new ones since coming home. i'm trying to be ok with that. of course i want to be back to 'normal' but maybe this is it. i also still have my good days and bad days. my good days are great! and my bad days are the same as before - fatigue, tired heavy legs. it's very frustrating but i have to remember that i still have ms and this is bound to happen. the true test will be this time next week when i return to work. i spent august relaxing and camping. it was great but as with july, it went by too quickly!!
tomorrow i am meeting with a physio therapist who specializes in ms. i'm hoping to get an exercise and stretching routine to maximze my improvements. i've never been one to work out so that in itself is going to be a challenge!
last week i saw my neurologist. i didn't tell him i was having the procedure beforehand. as we were walking from the waiting room to the office, he said "has your walking improved?" i said "maybe" with a smirk. he knew something was up. so we told him we went to mexico to have the procedure. he was cool and skeptical. (never rude or condisending) he looked at the x-ray of the stent, the mri scans and then the disc of the procedure. all the while, not saying much. ricardo and i were explaining things. then ricardo said something about me being able to jump now. he looked up with a smile and said, "well, let's see it" so i jumped. i think i impressed him. ;) he then went on to do his exam. he did point out that i was still showing symptoms to which ricardo replied, "well, she does still have ms." at the end of the exam, he admitted i was showing objective improvements which means, he can measure the improvement. he said my balance and right leg were improved. overall i think the appointment went very well. he wants to see me in 6 months for a follow up. i don't think we convinced him that the procedure was the way to go but i did enlighten him and prove that there is something there.
some of my noticeable improvements:
- still holding ricardo's hand
- i can jump
- wash my hair with my eyes closed without leaning on the wall
- walk up 5 or 6 steps without using the railing (still working on going down)
- climb into ricardo's truck without using my hand to lift my leg up to the step
- get out of bed and start walking (i used to stand up all wobbly, hang onto the wall while my legs did their spasm thing, get my balance and then go)
- more energy - i have been told my voice is even perkier
- balance on one foot
- lift leg up, bent at the hip, to a 90 degree
- improved balance
- my walking is better - i am not throwing my right leg forward with my hip - my back likes this improvement!
i have had many people ask if they can forward on my blog or give my email to someone they know with ms, and i say please do!!! if my experience can help one person then it was all worth it!!!
xo
well it's been a little over a month since i had the procedure! where does the time go?!!? i have been doing good. all of my improvements have stayed, which is awesome! but i haven't noticed any new ones since coming home. i'm trying to be ok with that. of course i want to be back to 'normal' but maybe this is it. i also still have my good days and bad days. my good days are great! and my bad days are the same as before - fatigue, tired heavy legs. it's very frustrating but i have to remember that i still have ms and this is bound to happen. the true test will be this time next week when i return to work. i spent august relaxing and camping. it was great but as with july, it went by too quickly!!
tomorrow i am meeting with a physio therapist who specializes in ms. i'm hoping to get an exercise and stretching routine to maximze my improvements. i've never been one to work out so that in itself is going to be a challenge!
last week i saw my neurologist. i didn't tell him i was having the procedure beforehand. as we were walking from the waiting room to the office, he said "has your walking improved?" i said "maybe" with a smirk. he knew something was up. so we told him we went to mexico to have the procedure. he was cool and skeptical. (never rude or condisending) he looked at the x-ray of the stent, the mri scans and then the disc of the procedure. all the while, not saying much. ricardo and i were explaining things. then ricardo said something about me being able to jump now. he looked up with a smile and said, "well, let's see it" so i jumped. i think i impressed him. ;) he then went on to do his exam. he did point out that i was still showing symptoms to which ricardo replied, "well, she does still have ms." at the end of the exam, he admitted i was showing objective improvements which means, he can measure the improvement. he said my balance and right leg were improved. overall i think the appointment went very well. he wants to see me in 6 months for a follow up. i don't think we convinced him that the procedure was the way to go but i did enlighten him and prove that there is something there.
some of my noticeable improvements:
- still holding ricardo's hand
- i can jump
- wash my hair with my eyes closed without leaning on the wall
- walk up 5 or 6 steps without using the railing (still working on going down)
- climb into ricardo's truck without using my hand to lift my leg up to the step
- get out of bed and start walking (i used to stand up all wobbly, hang onto the wall while my legs did their spasm thing, get my balance and then go)
- more energy - i have been told my voice is even perkier
- balance on one foot
- lift leg up, bent at the hip, to a 90 degree
- improved balance
- my walking is better - i am not throwing my right leg forward with my hip - my back likes this improvement!
i have had many people ask if they can forward on my blog or give my email to someone they know with ms, and i say please do!!! if my experience can help one person then it was all worth it!!!
xo
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