CCSVI treatment setback?

This morning a read an article in the August 4th edition of the Globe and Mail, British Columbia edition. The headline read Studies cast doubt on hotly debated MS treatment. Of course I began to read it. It states, New research from Sweden and Germany provide the first negative medical evidence on Dr. Zamboni’s theory. .. Much of the media attention has been focused on the amazing results of this treatment and how Canadians have no choice but to travel at great personal expense to receive it. I guess it's now the neurologist turn at some media coverage.

The studies were published in the Annals of Neurology. Now there’s a big surprise. The neurologists are against any evidence that would indicate the Multiple Sclerosis may be caused by anything other than a neurological condition. For the most part, the Neurological community is out to disprove Dr. Zamboni’s Hypothesis. They don’t seem to be interested in the truth. The study states that there were no unusual blockages in the veins of MS patients compared with a control group. If this control group is anything like the control group they used in the Buffalo study they may as well not used a control group at all. You see the buffalo study used family members of MS patients as their control. This makes no sense as a genetic link is probable in cases of Multiple Sclerosis.

The study in Germany involved 56 MS patients and 20 healthy patients. The Swedish study used involved 21 MS patients and 20 healthy patients. They call that Science? They accuse Zamboni's original study of being to small and contest it with 2 studies that are smaller?

We just got back from 1 single clinic in Mexico that had treated 55 MS patients where every single one had narrowing! Yes – every single one! We personally met 15 of these patients who all testified they had narrowing and were all seeing improvements in their MS symptoms. There are clinics all over the world improving the lives of MS sufferers. There is no telling if the relief will last or if it is temporary. But it has gone far beyond anything offered by neurologist and drug companies.

In Germany they used ultrasound imaging to determine whether or not there was narrowing of the veins. The Swedish study used involved 21 MS patients and 20 healthy patients and they used MRI. MRI and ultra-sound imaging is known to be inconclusive in the diagnosis of CCSVI. You can’t ultra-sound the azygos vein and the use of this technique on the jugular only helps to give an idea of what is going on. Using these imaging techniques, Azure-Dee showed no signs of narrowing at all. Yet the venogram showed her azygos vein was so twisted and restricted that a balloon angioplasty was unable to get into the narrowed area. The only true way of knowing whether or not there is narrowing is to perform a venogram. It is the gold standard. These 2 studies, performed by neurologists, used techniques that have been proven to have inconclusive results. How can you come to a conclusion based on inconclusiveness? It is either idiocy or deception.

The article can be read here.

Ricardo

Home Sweet Home

well, we are home after an evening layover in van. it actually worked out nicely. we got to have drinks with josh, who picked us up and have breakfast with erin who dropped us off. it was so nice to see them. our one dog welcome home committee was pretty impressive! it was like we were gone for months he was so excited to see us!
i have to say the support over this last week has been incredible! i am truly blessed with the family i was born into, the family i married into and all my friends i have collected along the way. thank you all so much. it was really nice knowing people were thinking of me, praying for me and hoping for the best for me.
now that we are home, i am looking forward to relaxing for the rest of the summer. july was so busy with holidays, calgary and bon jovi, then company and off to mexico! i have nothing planned now until labor day! i am hoping this down time allows my body to adjust to this new-found blood flow and do some healing. i hope that with this healing comes many things - maybe taking the dog for a walk, riding my bike or walking down to cosen's bay. all things i could not do without a huge struggle. maybe one day i'll get my feet back into a pair of heels! woohoo! now that would be exciting! all in all, i am stoked with the improvement i have already seen. this time last week i could not climb into my husband's truck without using my hand to lift my leg up. last night i climbed in, no problem! it's kind of weird because i don't know what i can and can't do now until i try. i got so used to using my hand to lift my leg, i had to consciously not do it to see if i could. i have to relearn my body again. when i can do it, i feel like a kid in a 'look mom! no hands!' kind of way. it's kind of funny. one thing i have truly enjoyed over the last week is holding ricardo's hand again! i has been a very long time since i could take his hand because i wanted to and not his arm because i needed to.
anyway, we are home, i am good and will continue to post updates on my progress.
xo