Monday, April 25, 2011

Hi All.
It's been awhile since I have written. I have been asked how I am feeling since the procedure and if the postitive effects have lasted... if I am being honest, they haven't. I felt great for a good 6 months or so but over the winter I started to regress. My walking took a turn, taking with it my balance and strength. My energy level was the only thing that really maintained but now it is worsening. I am so sad and angry and frustrated BUT I don't regret doing it! and I still tell people that are considering having the procedure to do it! I guess it's all part of the disease right? It affects us all so differently so why wouldn't this procedure. I'm not sure why my symptoms have returned. I have a stent in my azygos vein which can't renarrow and my jugulars were fine in Mexico. It would be kind of weird for them to suddenly narrow over the last 8 months. My father in-law has a theory that the azygos vein is pinched at the end of the stent, essentially causing a blockage... A couple weeks ago when he was telling me about his theory, he also told me he wanted me to return to Mexicao and have the procedure done again and he would pay!! I was shocked at his generosity as they helped pay for the first procedure. I am truly blessed to have such a caring family!! And so now I need to do some research and decide if going back to Mexico is the right decision or should I go somewhere else, maybe in the States and see what they have to say. The last month or so has been tough but I will push through, as I always do. I will keep you posted about the upcoming procedure, wherever it might be. I don't know what they will say or find, but I am hopeful!!

3 comments:

  1. I am sososo sorry to hear about how you are feeling. I'm so happy that you have such a generious family.....take them up on it. I have always thought that if i needed too i'd go back to Dr M.. I really liked him and he has such an extensive amount of knowledge in angio/veno plasty. However, i have been seeing A LOT of amazing info on a Canadian Dr involved in a clinic in California. It is Dr.Hewitt and he belongs too Synergy. They do a new kind of 3D MRI/V. It's worth looking into, they don't have a wait list.
    all my best,
    marie

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  2. Dr. Hewitt called me. I'm supposed to send him my disks and he'll assess if he can fix me. I told him about you. He said that a lot of stent patients have "clotted" off at the location of the stent.
    He seemed pretty easy going on well known with the subject.
    He's at synergy health in Costa mesa California.

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  3. Azure-Dee,

    This sucks...I`m sorry the results only lasted this long for you. Hoping you hear some better news soon.

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