Monday, July 4, 2011

i can't believe it has been 10 days since my procedure! where does the time go?
this was definitely a different experience than last time. there was no dramatic changes like last time. i was sick over the weekend after my procedure so that sucked. not sure if it was a bit of the flu or a reaction to the anesthetic or what. that was no fun! by monday i was feeling much better flu wise but wasn't noticing any big changes ms wise. we flew home that day. when ricardo's parents picked us up at the airport, his dad commented that my walking was better. he said i was stepping instead of dragging. ricardo and i thought that was interesting as neither of us had noticed. i was tired, we had been flying for the last 5 hours and it was 10 at night. all factors that would make me not walk very well. since then, i have been paying closer attention and i think i have improved a bit. over the weekend we were camping and a couple friends that i see regularly and know how i was walking, agreed that i was walking much better! i'll take it! it's not as dramatic as last time but i'll take it! also, looking back to the day we flew home, i walked quite a ways in the calgary airport by myself (ricardo had to go ahead) and i was fine. i didn't really think about it at the time, i just had to get to customs. :)
last week i had my follow up phone call with the doctor. this clinic is concered with treating ccsvi, not ms. there are about 10 specific ccsvi symptoms and they happen to also be ms symptoms. when we spoke, those were the improvements he wanted to know about and if any of my other ms symptoms improved, he said that was a bonus. it's interesting because everyone else is 'treating' ms. so ms really is a neurological disease and ccsvi is a vascular disease and they are intertwined... it's all such a mystery!
all in all, i feel good and am hopeful that i see more changes as the summer goes on. :)

1 comment:

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