We have also had many inquiries about fundraising for the procedure as it is very expensive and insurance won't cover any of the costs. We are not doing a fundraising event as we don't want to wait any longer for this procedure and planning a fundraiser takes time. In spite of that, we have received some donations to help with the medical costs and the costs associated with getting the treatment. We are humbly grateful.
On July 15th, 2003, Azure-Dee was diagnosed with MS, a disease with no known cause or cure. This diagnosis would forever change her life. Daily injections may be slowing the progression of the disease but there is no known cure and until recently, no available treatment of the symptoms.
In the fall of 2009, the media aired a story about Chronic Cerebral Spinal Veinous Insufficiency, as examined by Dr. Paolo Zamboni of Italy. CCSVI is the blockage or twisting of the jugular veins that drain the blood from the brain. This can cause a reflux of blood to travel backwards into the brain, leaving iron deposits in the grey matter, essentially causing brain damage.
To treat this condition, an angioplasty is done in the jugular veins of the neck and upper chest. The angioplasty opens, or balloons, the narrowed vein, allowing the blood to drain smoothly. This process has been having remarkable and unparalleled results. Symptoms are being relieved and people are getting their lives back.
Over the past few months, the MS world has been flipped on it's ear with people demanding access to this treatment. At this time, it is considered experimental in Canada and is thus unavailable. MS patients are travelling the world over to get relief.
On July 26th, 2010, Azure-Dee will be in the hospital in Cabo San Lucas, Mexico, for her chance at this life changing procedure.
In the fall of 2009, the media aired a story about Chronic Cerebral Spinal Veinous Insufficiency, as examined by Dr. Paolo Zamboni of Italy. CCSVI is the blockage or twisting of the jugular veins that drain the blood from the brain. This can cause a reflux of blood to travel backwards into the brain, leaving iron deposits in the grey matter, essentially causing brain damage.
To treat this condition, an angioplasty is done in the jugular veins of the neck and upper chest. The angioplasty opens, or balloons, the narrowed vein, allowing the blood to drain smoothly. This process has been having remarkable and unparalleled results. Symptoms are being relieved and people are getting their lives back.
Over the past few months, the MS world has been flipped on it's ear with people demanding access to this treatment. At this time, it is considered experimental in Canada and is thus unavailable. MS patients are travelling the world over to get relief.
On July 26th, 2010, Azure-Dee will be in the hospital in Cabo San Lucas, Mexico, for her chance at this life changing procedure.
That's an understatement ... the MS world had been flipped on it's ear....
ReplyDeleteThis is exciting and nerve racking for a mom..
Mom's only want what is best for their child... no matter how old they are...
This is giving alot of people hope for their futures... and how exciting to be able to do things again that they have not been able to do in a while....Having the symptoms relieved sounds great... so Azure-Dee you'll be back on the bike chasing Ricardo around the campsite before we know it....You know my heart is with you and you know I will be thinking of you right thru all of this... Waiting to hear the great news next week... I love you.... MOM xoxoxo Ricardo give Azure-Dee a big hug for me... :)Azure-Dee give Ricardo a big hug for me as well.. for being there for you and helping with the computer work... :) xoxox
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